The Group would find it helpful if the Network Team could contact Trusts to look at how their colorectal cancer data is collected and entered onto the SCR. 13 Cancer Waiting Times (CWT) Group members expressed some difficulty interpreting the Cancer Waiting Times Report which had been circulated with the Agenda. SCowley highlighted that insufficient data is being collected. The SSG would like Lucy Elliss-Brookes to attend the next meeting to talk about the CWT data in more detail. Action: SCowley will invite Lucy Elliss-Brookes to attend the next meeting. As there is currently no national standard for triage, LHunt is informally collecting details of the procedures used in each Trust. The representatives from Bath, Yeovil and Weston provided brief details of their triage systems. It was agreed that workload has increased as a result of the screening programme. The consultants also commented on the poor quality of some GP referrals. It was proposed that an audit be designed to examine the referral patterns in each Trust including false referrals. This would be a substantial piece of work which the Network Team would have to undertake on behalf of the Colorectal SSG. Action: SCowley to ask the Network Informatics Team to consider running an audit of referral patterns for colorectal cancer across the Network. 15 User Involvement Feedback The User Representatives from Taunton remain concerned that they cannot connect with colorectal patients currently undergoing treatment. NCaldecoat suggested that they write to the Patient and Public Involvement (PPI) Lead in their Trust (Julie Vance in Taunton), as User Representatives on the Network SSG to ask for help in using questionnaires and experiential interviews to obtain feedback from current patients. Action: HSutton to make contact with Julie Vance the Taunton PPI Lead to discuss how most effectively to make contact with colorectal patients. NFrancis supported the wider use of user satisfaction questionnaires and has adapted a validated version for use in Yeovil. He will bring this questionnaire to a future meeting. NCaldecoat suggested that completion of a user satisfaction questionnaire could be included in the patient pathway. (Note from Rowland: - this item wrongly identifies the user representatives as being from Taunton and therefore incorrectly actions Heather to contact the Taunton PPI Lead instead of the Yeovil PPI Lead.) Back