‘Colon-aid’ the Yeovil District Bowel Cancer Support Group
Site last updated 25 January 2012
Minutes of the 40th Colorectal Cancer Patient Support Group held on Friday 20 November 2009 at St Margaret’s Hospice in Yeovil
Present 18 members attended the meeting.
Apologies 15 members offered their apologies for non-attendance.
Apologies 15 members offered their apologies for non-
Welcome
Rowland welcomed members to our 40th meeting and was pleased to introduce new members Celia and Angela and our guest speaker Andrea Ledger, Community Fundraiser (for the east of the county), St Margaret’s Hospice.
Correspondence
St Margaret’s Hospice: letter confirming guest speaker for meeting on the 20th November 2009.
ASWCS advising meeting dates for Colorectal SSG in 2010 will be 8th February; 28th June and 27th September between 2.30 to 4.30 venue details will be advised shortly.
Ostomy Lifestyle: Julie Burton provided details of a request for those affected by stoma surgery to consider joining a Patient Panel to help establish what issues are important to patients and how these issues can be addressed in the most positive and informative way possible. Information leaflets were passed to members with stomas.
Sue Martin Data Manager/Trial Coordinator, Professor Yarnolds Office, Royal Marsden Hospital relating to the HOT II trial of hyperbaric oxygen (HBO) therapy in patients suffering long-term adverse effects of radiotherapy for pelvic cancer.
Matters Arising
Colorectal SSG on 9th November 2009 This meeting took place in Room 6, Level 3, Bristol Royal Hospital for Children. Stan and Heather attended the meeting and expressed their reservations about attendance at future meetings. They felt they could not contribute to the meetings because they did not have access to new patients and carers to obtain their views and experience of the care and support they received that could be fed back to the SSG. Patient questionnaires were in use in some areas but they felt that conversations with new patients by someone who had themselves had CRC might provide a better insight into the patient experience and satisfaction with the service. Annie Lanigan, Chair of the Somerset Colon Cancer Support Group said that she had overcome the problem at Musgrove Park and arrangements were now in place to obtain patient feedback. Stan and Heather will liaise with Annie to get details of the Musgrove Park arrangement before making approaches to YDH to see if it could be adopted at Yeovil. Stan and Heather agreed to continue attending the CRC SSG meetings for the time being.
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Rowland welcomed members to our 40th meeting and was pleased to introduce new members Celia and Angela and our guest speaker Andrea Ledger, Community Fundraiser (for the east of the county), St Margaret’s Hospice.
Correspondence
St Margaret’s Hospice: letter confirming guest speaker for meeting on the 20th November 2009.
ASWCS advising meeting dates for Colorectal SSG in 2010 will be 8th February; 28th June and 27th September between 2.30 to 4.30 venue details will be advised shortly.
Ostomy Lifestyle: Julie Burton provided details of a request for those affected by stoma surgery to consider joining a Patient Panel to help establish what issues are important to patients and how these issues can be addressed in the most positive and informative way possible. Information leaflets were passed to members with stomas.
Sue Martin Data Manager/Trial Coordinator, Professor Yarnolds Office, Royal Marsden Hospital relating to the HOT II trial of hyperbaric oxygen (HBO) therapy in patients suffering long-
Colorectal SSG on 9th November 2009 This meeting took place in Room 6, Level 3, Bristol Royal Hospital for Children. Stan and Heather attended the meeting and expressed their reservations about attendance at future meetings. They felt they could not contribute to the meetings because they did not have access to new patients and carers to obtain their views and experience of the care and support they received that could be fed back to the SSG. Patient questionnaires were in use in some areas but they felt that conversations with new patients by someone who had themselves had CRC might provide a better insight into the patient experience and satisfaction with the service. Annie Lanigan, Chair of the Somerset Colon Cancer Support Group said that she had overcome the problem at Musgrove Park and arrangements were now in place to obtain patient feedback. Stan and Heather will liaise with Annie to get details of the Musgrove Park arrangement before making approaches to YDH to see if it could be adopted at Yeovil. Stan and Heather agreed to continue attending the CRC SSG meetings for the time being.
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