‘Colon-aid’ the Yeovil District Bowel Cancer Support Group
Member 4 (a) Received oxaliplatin.
(b) Has experienced continuing problems with fingers and toes since 2001.
Member 5 (a) Received oxaliplatin.
(b) Has experienced continuing problems with fingers and toes since 2004.
Member 6 (a) Did not receive oxaliplatin.
(b) Chemotherapy was discontinued at an early stage of treatment.
Member 7 (a) Did not receive oxaliplatin.
(b) Still experiences brittle nails and occasional running eyes.
Member 8 (a) Received oxaliplatin.
(b) Has experienced continuing finger and toe symptoms since 2003.
Member 9 (a) Received oxaliplatin.
(b) Experienced finger and toe tingling within 30 minutes of receiving treatment.
These effects passed off a few days after treatment.
(c) No ongoing symptoms since completion of treatment in January 2001.
(b) Has experienced continuing problems with fingers and toes since 2001.
Member 5 (a) Received oxaliplatin.
(b) Has experienced continuing problems with fingers and toes since 2004.
Member 6 (a) Did not receive oxaliplatin.
(b) Chemotherapy was discontinued at an early stage of treatment.
Member 7 (a) Did not receive oxaliplatin.
(b) Still experiences brittle nails and occasional running eyes.
Member 8 (a) Received oxaliplatin.
(b) Has experienced continuing finger and toe symptoms since 2003.
Member 9 (a) Received oxaliplatin.
(b) Experienced finger and toe tingling within 30 minutes of receiving treatment.
These effects passed off a few days after treatment.
(c) No ongoing symptoms since completion of treatment in January 2001.
This survey revealed that everyone who received oxaliplatin had some degree of peripheral neuropathy, however, a simple survey like this would not establish why some patients experienced the more severe effects. It did show that while we might have had similar treatment regimes we are all different and our bodies respond differently.
We had a number of articles providing information about peripheral neuropathy and copies are available for members who are interested.
The National Coalition for Cancer Survivorship has a section on Neuropathy in its information on Palliative Care & Symptom Management at www.canceradvocacy.org
CancerBACUP has information on Peripheral neuropathy at www.cancerbackup.org.uk in its Resources Support pages.
The BMJ has a review on Peripheral neuropathy by Richard A C Hughes this can be downloaded from bmj.com.
The National Institute of Neurological Disorders and Stroke has a Peripheral Neuropathy Fact Sheet at www.ninds.nih.gov.
We had a number of articles providing information about peripheral neuropathy and copies are available for members who are interested.
The National Coalition for Cancer Survivorship has a section on Neuropathy in its information on Palliative Care & Symptom Management at www.canceradvocacy.org
CancerBACUP has information on Peripheral neuropathy at www.cancerbackup.org.uk in its Resources Support pages.
The BMJ has a review on Peripheral neuropathy by Richard A C Hughes this can be downloaded from bmj.com.
The National Institute of Neurological Disorders and Stroke has a Peripheral Neuropathy Fact Sheet at www.ninds.nih.gov.
The subject of follow up of patients after completion of chemotherapy and reference to a Palliative Care Nurse was discussed. There was a consensus that one was very much left on their own with little or no guidance on matters such as follow up blood tests, depression, physiotherapy, dealing with ongoing peripheral neuropathy, etc.
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